Why is it so important?
Cured, however, does not automatically mean healthy. Late effects can still occur even after successful treatment. Follow-up care is essential to ensure that late effects are detected and treated as early as possible. The competence centre advises and provides information about follow-up care and survivorship.
Most paediatric oncology centres have follow-up services for their young childhood cancer patients. For adult survivors, the scope and model of the offer varies. The cantonal hospitals in Aarau, Liestal, Bern and Geneva offer interdisciplinary follow-up consultations, which are available to everyone and which follow the guidelines of the US Passport for Care©.
Individual follow-up care
The “Survivorship Passport” is an instrument for the early detection of late effects. It meticulously documents the medical treatment and makes concrete, evidence-based recommendations for long-term follow-up care. This starts around ten years after the end of the therapy. In the context of long-term prevention, every survivor receives an individual screening plan, the Survivorship Passport. Survivors also have the advantage of being informed about possible late effects, which can reduce anxiety and stress.
A good rehabilitation offer is also an optimum form of support for survivors. After a certain time has elapsed between a patient’s treatment and the present, other issues and health aspects can be the focus. The main issue is the recovery of physical, mental and social performance. Rehabilitation offers among peers, tailored specifically to survivors, are offered in areas just over the border.
The Childhood Cancer Switzerland office works with various partners to provide the most comprehensive information and counselling services possible. One of these partners is the self-help organisation Procap, which advises survivors on social security issues. The invalidity insurance (IV) offers general support with career guidance, retraining and job placement.