Childhood Cancer Registry
The Childhood Cancer Registry (ChCR) is the Swiss national registry that records cancer in children and adolescents up to the age of 19. It records detailed information on the diagnosis, as well as on the treatment, on the course of the disease and its late effects. The ChCR evaluates the information collected, for example, for national cancer statistics and health reporting on the subject of cancer in children and adolescents and supports research.
The ChCR provides information about the development of different types of cancer in children and adolescents, the way these types of cancer progress and about the effectiveness of treatments. The knowledge gained helps ensure optimal care and follow-up.
The Cancer Registration Act (CRA; SR 818.33) came into force on 1 January 2020. This federal act regulates the recording of informative and reliable data about cancer in Switzerland. Since the act came into force, the ChCR has been managed on behalf of the Confederation. The ChCR originates from the Swiss Childhood Cancer Registry (SCCR), which has been recording cancer cases in children and adolescents nationally since 1976. The ChCR records new cases and data on the entire course of the disease and treatment. The Cancer Registration Act obliges all physicians, doctors and hospitals to report all diagnosed and treated cases of cancer in children and adolescents up to the age of 19 to the ChCR.
- Population-based data collection on cancer in children and adolescents between the ages of 0 and 19
- Documentation of medical diagnosis and treatment
- Documentation of prognosis and chances of recovery from cancer in children and adolescents as well as the identification of long-term consequences (relapses, late effects)
- Evaluation of the collected data, for example for national cancer statistics, health reporting on children and adolescents with cancer and to support research
Swiss Childhood Cancer Registry with a new coordinator
Ursula Kühnel new executive coordinator of the Swiss Childhood Cancer Register.
The HEAR trial is launched
Access to hearing tests after childhood or adolescent cancer to be facilitated.