"4outof5" - a campaign by Childhood Cancer Switzerland
Children with cancer can be cured!
Medical success in the treatment of childhood cancer means that 4 out of 5 children in Switzerland can be cured. Nonetheless, after accidents, cancer is still the second most common cause of death. In addition, more than two-thirds of children and adolescents who are cured of cancer (known as “childhood cancer survivors”) suffer from long-term complications.
Childhood Cancer Switzerland calls for solidarity
On 1 September 2017, Childhood Cancer Switzerland is launching a solidarity campaign and video with the aim of raising public awareness of this issue and of its place in the legislation and in health, social and research policy.
People in Switzerland will be informed about the situation of children with cancer, survivors and their relatives:
- Children and young people with cancer and their families all face challenges during the treatment. The health-related and financial pressures are high. Often one parent has to give up work, and there is no insurance for lost earnings in this case. The families also incur high additional costs for hospital visits, psychosocial support and meals away from home, which are not covered.
- From a medical perspective, the challenge in treating cancer is not only to heal the disease, but also to reduce the long-term physical and psychological side-effects as much as possible.
- Specific research and clinical trials are also needed to develop new treatments and medicines especially for children with cancer.
- There is a lack of specific medical and psychosocial services for survivors to ensure that, as far as possible, they have equal personal, professional and economic opportunities despite their illness.
Please support the campaign by sharing the video on social media, linking to it from your website, including it in your communications, or placing an advert in your publications. (See detailed information below)
Get involved in the campaign!
We need your help to ensure the campaign reaches as many people as possible!
- Share the video clip on social media (Facebook, Twitter, Instagram, Snapchat, Linkedin, Xing, etc.)
- Use the following hashtags: #4outof5 #ShareDonate #ChildhoodCancerSwitzerland #gogold
- Put a link on your website to our campaign page. Online banners are available for this.
- Place an advert in your magazine, company publication, association newsletter, etc.
Materials for the Childhood Cancer Switzerland campaign are available here:
Link to the video: youtu.be/DHqT3ZI7KMA
The umbrella organisation “Childhood Cancer Switzerland”, comprising the following organisations:
- ARFEC Association of families with children with cancer in French-speaking Switzerland
- Childhood Cancer Research Foundation Switzerland
- Kinderkrebshilfe Schweiz
- Swiss Childhood Cancer Registry
- SPOG Swiss Paediatric Oncology Group
- Basel Region Childhood Cancer Foundation
Research is important for children with cancer
Children and adolescents in Switzerland who have cancer are treated at nine centres specialising in paediatric oncology. The challenge is to minimise the long-term side effects of the aggressive therapy as far as possible. An important issue here is the fact that the drugs used were not developed for children. Clinical trials are needed to ensure that they are nonetheless used in a scientifically controlled manner.
A specific research effort is also needed so that new therapies and medicines can be made available for cancers for which the cure rate is currently low or which have serious side effects. Childhood Cancer Switzerland is represented in European research projects and lobbies for improvements in the medical care provided for children and adolescents with cancer, to ensure that the clinical research needed to fulfil this aim can be carried out, and for the promotion of basic and laboratory-based research into childhood cancer.
The diagnosis and treatment of cancer in children and adolescents are a stressful experience for everyone concerned. Children and adolescents with cancer spend months travelling between their home and hospital. It is an extremely stressful time for children and parents alike, and one associated with financial, health and psychological issues.
Parent organisations and foundations provide support for families, for example by paying for travel between home and the children’s hospital, or by organising events at which those affected can talk to others in a similar situation and recharge their batteries.
Childhood Cancer Switzerland is also involved in political issues, such as protection against dismissal of affected parents and reimbursement of costs by insurance providers.
Many people who had cancer in childhood continue to suffer as adults from the physical and psychological effects of the disease and its treatment. The reduction of long-term complications is an important aspect in optimising oncological therapy to ensure that children and adolescents whose cancer has been treated successfully can continue to enjoy a good quality of life in the longer term.
There are many long-term complications of cancer treatment: amputations, growth disorders, cardiovascular diseases, disrupted hormones, infertility, cognitive impairment and an elevated risk of developing a second cancer. Survivors need individual follow-up so that these complications can be identified at an early stage.
The launch of the “Suivinet” internet platform and the introduction of the European Survivorship Passport are two activities with which Childhood Cancer Switzerland has set durable standards for improved information, counselling and networking of survivors and the establishment of systematic follow-up.